Confiscated

My doctor took ALL the pills I had stockpiled and didn’t use during my suicide attempt.

All of them.

And then he destroyed him.

I hate my whole team right now. 

I don’t want to recover I want my damn pills back so that I have an out in case I need it. I had hundreds of pills saved up sinc I was in late high school and college. From every surgery and injury bc, well, my pain threshold is high and I didn’t need them for that purpose. 

And now they’re gone. 

And I can’t have them back.

And I’m so pissed. 

I have no clue how I am going to go to work tomorrow. I feel like I need to go to therapy. Ironic since instead of going inside at this very moment I’m in my car typing this. 

But I can’t go in. I DONT WANT TO HEAR ABOUT EVERYONE ELSES ISSUES. I have enough on my mind without all their Bologna. I don’t need to hear about their problem with their job or their family or their day. I want to not hear about how awful everyone’s lives are because right now ALL I WANT IS TO END MINE. And that will NOT be helpful. 

I texted my IOP therapist (one of them) that is running group and said I’m not coming. She promptly replied with “yes u r” to which I have yet to respond and clearly, yet to abide by. 

Part of me is wondering if they’ll even care if I don’t show up. I’m a lost cause. I’m a burden and a mess. I’m complicated and hard to handle with therapy because I don’t trust anyone fully with my feelings including my conscious self. 

Anyway. I’m tired. I hate me. I WANT MY PILLS BACK. On a scale of hate my doctor is on the top. He’s a nice guy and easy to talk to but he is evil and awful for taking them before I was ready. My whole team is actually bc I wasn’t ready and they still forced me to do it. Well now I am just BEYOND depressed again and not going to treatment and I really don’t see how that’s at ALL useful. 

I hate them all. I hate them, I hate them I HATE THEM. 

All I want is to punch something right now or scream or nth or to run and exercise but noooooo I can’t exercise because that would be breaking the rules and even though I am overweight- despite what they say- I am not allowed to do it. Well eff this I am so done listening to people who lie about my weight and won’t really tell me if I have gained. I’m tired of people not letting me choose anything for myself. I hate this whole stupid process and I hate my life. Why did I even go to treatment in the first place??? If God really had a plan he’d have stopped all this madness a long time ago. 

I’m done trustin people. I’m done trying. I am just relying on myself from now on. The end no one else but me. 

The Middle

Why is it that no one tells you how bad the middle really is?

How the pain and feelings you’ve buried for so long will begin to resurface with a vengeance that can be far too strong. 

How you’ll begin to feel happiness again, smiling and laughing with family and friends

Despite the near constant exhaustion of battling your inner demons.

 

Why is it that no one tells you how long the middle lasts?

How you trudge through the hours and minutes of each day contemplating whether you did the right thing.

How you’ll feel like you have come so far and feel like you might make it to the end

Only to start going back to your old behaviors, steering towards complete relapse.

 

Why is it that no one tells you how the middle changes you?

How you’ll be unsure of who you’ll become and what will be left when all is said and done.

How you’ll feel relieved when the person you were meant to be is cautiously allowed to be seen

Yet petrified that the person you’ve grown into cannot coexist.

 

Why is it that no one tells you how hard the middle is?

How uncomfortable and painful it is to battle your thoughts and behaviors relentlessly.

How you’ll begin to conquer your fears and break all your made up rules

Only to realize your mind has formulated dozens more.

 

Why is it that no one tells you how lonely the middle is?

How you’ll be surrounded by people trying to help and still feel like your just out of their reach.

How you can be in a room full of people who understand sharing your struggle with them

Yet feel like you’re still hopelessly alone.

 

Why is it that no one tells you how agonizing the middle is?

How your formerly corpse like body begins to show signs of life so you pretend to be as okay as your body now seems. 

How you’ll be able to tell some of your most shameful thoughts and tattle on yourself when you engage in behaviors

Even though you’re still in agony behind your no longer lifeless eyes.

 

Why is it that no one tells you how bad the middle is?

Going to Residential…

I am officially too sick.

That’s a thought I never once had before seeking help for my eating disorder.

It only became a faint thought when I talked to the admissions officer at PHP and then once I got in, I figured I was good. But starting with my tears over a pineapple cup and the realization that I wasn’t lying about my food intake they instantly began to raise concerns while simultaneously raising my calorie count as rapidly, safely and efficiently as possible.

To get me to the minimum 1000 calorie amount per day I am on 2 Ensure Plus’ a day and they let me bring my own safe food for lunch and dinner (which is the same 1 thing) and they work with me to get my snacks and other intake up higher. I purge too. Which has caused an abnormality on my EKG that is consistent and is requiring me to get EKGs every single week along with getting my blood drawn. The purging is scaring them, in addition to everything else, because they fear it will cause me to have a heart attack. I am scared but I can’t stop, I’ve lost control of everything. I can’t see what I look like, comprehend what I am supposed to eat or how much, know what’s normal and not about feelings toward food, know how to stop the instinctive purging and restricting. I just don’t know how.

So with that, they have officially recommended residential treatment.

I am too sick for PHP, I need more advanced care at a place with a doctor 24/7 and a full time staff to keep me from purging and restricting while I am not at the clinic like I am now. I have to uproot my life, go to Wisconsin (probably) and give up the “freedoms” I have (really they are my ED’s freedoms) and give them to someone else to try and save my life. It’s odd. I am technically not getting rid of my freedom since I guess I don’t really have any while living under this ED but still, it feels like I am giving up everything whereas right now I at least have the pseudo feeling of control and freedom.

My medical director at PHP has called the medical director at their residential facility in Wisconsin to see about getting me in ASAP. They will have a timeframe on Monday so I’ll know when I’ll be flying up. This will be an interesting flight. Instead of going on vacation to Chicago and DC in 3 and 5 weeks like I was supposed to, I am going to be in Wisconsin and not exactly on vacation. I guess that’s life.

Until then, I am on watch. My little sister is staying at my apartment. My therapist and dietitian and psychiatrist have all talked to her and my mom about how much I eat and how I am not allowed to use the bathroom for 30 minutes after meals and for the 30 minutes after that if I do, I have to talk to her the whole time (so she knows I am not purging). I have to eat multiple times a day (I eat small meals due to my GI conditions and because I have less urges to purge when I never feel full) and drink 2 Ensure Plus’. We try to keep me on the same time schedule as at PHP because they are trying to make this easy on me transitioning between weekend and weekday.

I feel like a newborn that they are trying to get on a schedule.

On top of that I went shopping today with my sister after lunch to distract me from food thoughts. I tried on a sweater that is long like a dress and would look good with leggings and I was showing my sister in the dressing room and she looked taken aback. I asked her if it looked okay and she said that you could see how skinny I was in it. She said to get the larger size, much to my EDs hate and the negative self talk went wild, but I did because she said the other one was scary how thin I was. The saddest fact is that I don’t see it. And she knows I don’t so she didn’t fight it but just said that they are supposed to be looser and it’ll be more comfy in residential and in winter so I did.

I wish I could see what she sees though.

So that’s how it is right now. Residential is my fate. I have both come to terms with this and not.  I waver back and forth but feel a lot better than I did Thursday when I deduced that the psychiatrist was recommending residential  after they asked if my mom could come to a session. That, I didn’t handle well because there were still so many questions. But I talked to a friend, we will call her M who has been to residential before we met and J, who is currently in PHP with me and who I’ve become friends with quickly, and she has also been to residential in the past and they both really made me feel better about it. So for now, this second, I am okay with the prospect of residential. Maybe it’s a chance for me to reassess my life and live somewhere new for a bit. I’ve been wanting to move up north for a long time now anyway.

But honestly, I never thought I would ever be too sick for treatment, I always thought I wasn’t sick enough to even complain about my situation but I guess, that’s all part of the illness.

PHP Recap: Week 1- So much doubt.

I have mixed feelings about recovery and treatment right now. I know I’ve been MIA the last week (sorry!!) but adjusting to being open and honest about my eating disorder is almost as difficult as hiding it.

2 things I would love advice on:

  1. If anyone knows/has experience with CBT focused on ERP (Exposure Response Prevention) treatment, please tell me I am on the fence as to if it is going to help (I don’t have any co-existing disorders). Do you find group therapy and more talk therapy helpful? Or no? Idk.
  2. I hate hate hate hate my psychiatrist.

Here’s my life since beginning treatment in a (quickish) recap:

Trigger Warning: calorie and food specifics. (I don’t want to trigger anyone but part of it is needed to make sense, and the other reason I am doing this blog is to remember it for myself so I want to be able to look at how far I have come. Please do not continue if you are easily triggered or pro-eating disorder.

  • I started Partial Hospitalization (PHP) on 9/3, two days after my birthday.
  • My program runs 8 hours a day. 8 *jaw drop*
  • I have cried every. single. day.
  • Day 1 I actually ate less than I typically eat in a day and they are now letting me bring my safe foods to make sure I am eating enough while they reintroduce food.
  • They think they want to send me to residential
  • I only had 1 safe food going into treatment, and ate 200-300 calories per day.
  • PHP requires we be at 1000 minimum *jaw drop* and they are trying to get me there ASAP
  • My therapy is CBT with Exposure Response Prevention being a BIG component of it I am still now sure how I feel about it, any advice is greatly appreciated.
  • I DESPISE my psychiatrist. I told my therapist and I am praying they let me see a different psychiatrist because this one is evil, mean and honestly I would trust a murderer before I trust him. Some perspective on this: I’ve only ever said I flat out dislike 4 people in my ENTIRE life. He is #4 so it’s not just me clouding my judgment.
  • I LOVE my dietitian!!! She has been so STELLAR about getting me adjusted to more than one food and up to the right number of calories and really doesn’t judge anything.
  • I wish there was more group therapy. If I go to residential I will need to find somewhere with more of this because I am a very, VERY social person and I feel like I am able to come to terms with my situation when I can talk it out with others.
  • I have had 2 EKGs and so many vials of blood drawn in the last week but the new medical doctor they make us go to was super nice and very trusting. I was petrified to go but I really liked him and in 20 minutes of talking to him I told him more about my ED than I revealed to my psychiatrist in 2+ hours.
  • Did I mention I have cried EVERY. SINGLE. DAY. !?
  • I have a family session tomorrow. Eek! My family is amazing but I am very unaccustomed to being vulnerable and sharing my feelings with them. I don’t like it.
  • I have lied about how much I purge and restrict out of fear of going to residential.
  • I am not sure what to do because part of me is realizing I need residential (one of the other ED patients even said she thought I needed it)
  • Part of me has no desire to get better even now that I am in treatment.
  • Part of me really wants to get better, especially now that I am in treatment.

But, things got better than they were day 1; however, I am still not sure about everything. Is it weird that I am more motivated to recover when I am there and not so motivated at home?!

I’ll be sure to write more now that I am semi-acclimated. Plus, I definitely will need to after my family session.

Dreading this.

its here. I need to leave in 15 minutes.

I’m not dressed. Haven’t gotten my stuff together, haven’t brushed my hair or teeth (both of which are taking longer since I broke my hand Sunday), nothing.

I have cleaned my apartment. 😬

I know I have to get up and get dressed and do this but honestly, I can’t just yet. I’ve gotten 6 texts since I woke up from family/friends telling me how strong I am and that I can do this but honestly, they have no idea how incredibly weak I am. 

I put on a good front, and yeah perhaps I was once strong but right now, I am weak, terrified, isolated and vulnerable. And I’ve said countless times how I HATE feeling vulnerable. I am sure this therapist will have something to say about that 😏

I seriously wish I could just go to my regular doctor, have them mediate this transition. At least I have become somewhat comfortable with them knowing. These people are different. They see countless people fighting this and I am positive I am not nearly skinny, sick or deep into this to even get their help. They are going to think I am joking. 

Besides I am not keen on losing all independence. Like I get you need to keep an eye on me but I am still an adult.

And I am not keen on eating. What if they don’t take into account my GI issues and what if they start up again? What if the food is gross? How will they really know how much I need? How can I trust them?

The answer: I CAN’T.

I feel like I would like this better easing into it. Like if I had met them before and then come back to start today. Why do they not do this?!?! The reason going through my head is because they are horrid, it’s awful, torture and not safe at all to trust them. And that, is just making me guard myself more. 

And has me planning my escape route. No joke. 

I have 5 minutes. (10 if I am pushing it) 

I really don’t think I can do this. I seriously wish I would’ve been able to talk to my dr this morning, she would’ve made me feel better about this and quieted the run away aspect that’s consuming me. 

I’ve got to decide to go. I have to. I’m just not sure how to do that. 

MEDICALLY CLEARED for Treatment!!!

This GIF pretty much sums up my feelings: a touch of relief/excitement mixed with sheer horror. One hurdle down and closer to getting into a program. My doctor (or rather, Nurse Practitioner since that is who I see) is the bomb dot com and called me back and said although my labs are consistent with being malnourished and she is concerned that they are still stable and she can clear me! I am both terrified and relieved.

I am going in tomorrow afternoon for another set of follow-up labs to check my potassium and other levels (because they are pretty out of whack) and I can get the letter and paperwork I need too. It’s all getting so real again whereas the last 10 days have had me living in a neutral state where I have been allowed to exist with my ED. Not that I mean anyone supports the ED, but where they are just trying to be supportive toward me while I get everything sorted out and they’ve been trying to encourage me to eat more but haven’t given much push back when I struggle or give into my ED brain. But now, now that I can get medically cleared it’s one step further. Now, I am going to have to talk to the treatment center again, have the case re-reviewed by the medical board, hopefully get this cleared by insurance (that’s my next major hurdle that I am freaking over) and then beginning treatment. But tomorrow, tomorrow is the next step and it feels horrifying, scary and slightly relieving at the same time.

Eating Out…

(Trigger warning: eating disorder; specific mentioning of foods)

Freaking Out!!! I am at Panera with my mom and sister. I am so nauseous today and don’t want to eat (moreso than my normal desire to not eat) but really can’t stomach the thought of cauliflower which is my only food normally. My mom said to get soup. I can reason chicken broth and I love Panera but I am so scared of the noodles and chicken being in the soup and I am so so so so so scared. I HATE eating out but Panera soup is only 80 calories so it’s a little better but still I am anxious over the bad parts. My mom said she’d ask for it to be mostly broth (thankfully) so we will see. Plus it is REALLY REALLY BUSY. Lots of people and that makes everything worse but I’m glad we got a table near the back where there’s less people. 

I’m waiting at the table while my mom and sister order. I can do this. I think. Ugh the anxiety is NOT helping my nausea and everything smells delicious. I used to study here daily and now I am on the verge of panic attack. I can’t believe this. I can’t believe I am scared of frickin soup. 

Oh well, I am just going to make this as big of a #recoverywin as possible considering I wouldn’t have dared come unless my mom and sister convinced me and they only did that knowing about my ED so they were super supportive.

Post-meal update: I survived. I only drank the chicken broth but still I haven’t had anything other than my one safe food in months and I didn’t cry or freak out. Still, I wish I could enjoy the food and being at a restaurant. 

The Waiting Room

UntitledAs the sliding door opens the cool air hits me causing me to shiver and get goosebumps from the stark contrast between the heat outside and the temperature inside. Actually, I’m not sure if the goosebumps are from the temperature or what I am about to do. I hesitate as I cross the threshold into the building and stare at the wall, at the names on the directory sign. I know where I am and where I am going but it allows me a few more moments. I head down the corridor to the second set of doors and walk through.

The aroma is familiar and fragrant, disinfectant and antibacterial soap. I hear my flip flops shuffle across the floor, past the chairs to my left to the closed glass window on the opposing wall. Nausea strikes my body causing me to grab my stomach out of instinct, even though I know it won’t help. I stare at the clipboard. In my peripheral view the receptionist is on the phone. Good. I don’t want to make conversation, I think. I pick up the pen, adjusting it in my hand and rolling it back and forth mindlessly until I see her looking at me. Slowly I begin to write my name on the next blank space. It doesn’t feel like me doing this, it feels like I am in a foreign body, like a robot just able to complete this task out of habit. I glance at the window, the receptionist is typing as she talks on the same call; It feels like she has been on that call forever but I know it’s just me feeling like time is stationary.

I turn and face the rest of the room instinctively looking at the doorway I just passed through, the one that leads to freedom and safety. Run, don’t do this, pierces through my mind instantly hollowing out the sound of the music playing overhead and the whispers from the few other people in the room. I stop in my tracks and stare for a second consumed by nausea from the whole situation. Fearing I am not able to take another step, I sit.

Nothing seems to be moving. I can feel and hear my heart pounding, the nausea is as strong as waves crashing on the shore during a hurricane. It’s hard, brutal and relentless. Leave NOW, is all I can think but I am frozen, frozen with fear. I hear a door open behind me and I can feel myself getting faint, the blood coursing through my body faster than if a snake had crossed my path during a trail run. I hear the nurse say something but my fear has overtaken me and I can’t comprehend anything. I see someone stand up on the other side of the room. Phew. Not me. I breathe for the first time in what feels like minutes and try and calm myself.

My head is all consumed in whether I should stay or leave before this goes any further. However, I continue to sit there, unable to move, unable to think for myself, unable to feel anything other than fear. The door opens again. My anxiety shoots back up past where it was before. There are less people ahead of me now, it’s time to make the decision. I hear another nurse utter more inaudible sounds but I can’t hear anything over the voices in my own head screaming for me to leave, to run straight out of here back down the corridor and outside to safety.

The nurse repeats the same inaudible message, I still don’t hear anything other than garbled syllables. I stand and begin to walk.

I walk briskly, with purpose and more confident than I am certainly feeling. I walk past the other chairs, the other patients and walk past the gentleman the nurse is acknowledging before she begins to escort him to an exam room. I walk straight to the door, only hesitating for a second as it automatically opens, and then down the coordinator. I never look back.

I feel relief as I cross the final threshold of the building and into the safety and security of the outside world, hiding away the secrets of my life. The last thing I think before everything goes black is, Maybe that’s not relief but actually regret. Then, darkness.

***

I open my eyes. I see the curtains and bedsheets. I look at my clock, 5:23am. It was just a dream.

Tuesday. I WILL Seek Help on Tuesday.

Somebody please tell me this will be okay.

I’m going to throw up.

I’ve decided though that Tuesday will be the day. I am scared about how terrible I feel.My doctor mentioned at my last appointment that some of my numbers may suggest my medicine dosage is too high (for a totally separate non ED thing) so maybe it’s related to that but the nausea is really bad, I have full blow passed out 3 times in the last week and almost passed out more than that. Last night I collapsed- in front of my roommate. I can’t sleep and my chest feels weak.

As I type this I am freaking out, running through it in my head, trying to figure out how to say, what to say and how to not back out or get too intimidated. It’s not making the nausea any easier lol. The short list of the other side effects (trigger warning) is the muscle cramps (like charlie horses all throughout the day), bloody noses, black outs, arm and leg weakness, headaches, crying in the grocery store, intense fear of food, on and off depression, safe foods, purging,, restrictive eating, hair thinning, nails are paper thin, chest pain, chest “weakness”- not really sure how to explain that, sore throat,fear of food, always cold- even in the FL heat, night blindness, and that kidney-area pain amongst others.

Even as I write that all I can think is: not sick enough. I know that sounds nuts/idiotic and just plain stupid but again, this a mental & physical thing and the mental aspect is so controlling. So, I am just going to keep trying to ignore it. I also know that this weekend is Fourth of July and my family and some friends are coming over to my and my roommates place. There will be food. Ugh. And whenever I have to eat non-safe food I feel like it invalidates my problems even if I purge it all and still restrict the limits it just makes the feeling that I am not sick enough seem infinitely harder to shake off.

I need to call the doctor but hopefully I can get in on Tuesday when they have late hours. And hopefully, I can go through with this.

Questions About Recovery….

Ever wonder what goes through someone’s mind when contemplating recovery? In addition to the “voice” in my head screaming at me that even thinking about recovery is bad, not okay and that I don’t have a problem and telling someone … Continue reading