When “Eating Disorder” becomes a description

Maybe it’s a double standard or me being overly dramatic (a word that has never been used to describe me) but on Tuesday I picked up a letter from my doctor to clear me medically for an ED treatment program and as I read the letter it was like being punched in the gut. Why? Not because the letter was mean or harsh or anything like that but rather it was because of the words ‘eating disorder’. They were used as a description and it was like this whole thing went from “an eating disorder” to “her eating disorder”. My eating disorder. MY. MINE. Like it is officially a part of me and honestly, I am not sure how I feel about how raw and real that is.

Now, I have (countless) times written on here I have an ED, used the words and typed them into Google but until 2 weeks ago I hadn’t ever said the words out loud and actually, when I came clean with my doctor I didn’t even say “eating disorder” I just described my actions and thoughts. Telling my best friend on Monday (last week) was the first time I ever said “I have been diagnosed with an eating disorder” but even then it was an illness, an invader, a foreigner. But “her eating disorder” just makes official that this is my disease, I have this, it is inside me, tearing me apart. It’s no longer a third party but rather it is ingrained in me, has become part (or most of) who I am, and is officially no longer something I can just brush off as me being a “hypochondriac” or “not sick enough for”.

And that’s a hard pill to swallow ( and worse than that terrible liquid potassium chloride I had to take yesterday bc of my terrifyingly low potassium levels). I mean it’s not like I wasn’t expecting those exact words in the letter because tbh, of course I was. I mean I have an eating disorder I’m not delusional about everything but still I still feel scared, raw and vulnerable. Vulnerable is the worst.

I think seeing it also solidified that I am going to have to start using it to describe myself in relation to my health. This will have to start sooner rather than later too and not just with the treatment center (who I have also managed to only say those words out loud to once as well) but also because next week I have to go to my fave doctor (totally serious). He is my amazingggg podiatrist and seriously I am a bazillion percent sure my feet would’ve been goners a longggg time ago if not for him, especially since I took up running lol. But he entertains all my wacko thoughts and ideas, like when he put me in a cast and I told him how I was going to finagle it so I could still skydive 8 days later (which I did successfully!). But I trust him enough to do surgery once and treat all my injuries well enough to keep running and now that I am facing surgery again for a different issue I know he needs (and deserves) to know. Plus, some of the extra issues I’m having are things dealing with my feet (constant numbness and my mom thinks the heel agony is bc of my calcium deficiency). But still I hate feeling vulnerable and I am still not comfortable with sharing that with anyone much less being the person saying the words eating disorder to describe me. But I have to because I know I need to and my appointment is next week.

I also have an appointment (again) with my primary doctor on Tuesday just to check in, do more lab work and make sure I am making headway in the admission to a treatment center (which I am). I am going to ask her just in case she says I don’t have to tell my foot doctor (which I doubt more than anything in the world) but still, I’ll ask. And hopefully, seeing her and being able to talk everything over will somehow help me get to the point where I am comfortable with telling another person about what’s going on (even though I know it is for the best, he will help too and that it is “okay” to ask for help).

So yeah, that’s where I am at. Not really sure where the post was supposed to go but I guess it was more of a ‘talk it out’ post since I can’t run right now and that’s normally where I have my ‘talk it out’ time within myself.

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Confession:

When I eat and the hunger goes away even a little I  always feel like I have overeaten, like a failure and then when the hunger comes back I am always relieved and more relieved the sooner it does. This is one of the things I hate the most. 

Eating Out…

(Trigger warning: eating disorder; specific mentioning of foods)

Freaking Out!!! I am at Panera with my mom and sister. I am so nauseous today and don’t want to eat (moreso than my normal desire to not eat) but really can’t stomach the thought of cauliflower which is my only food normally. My mom said to get soup. I can reason chicken broth and I love Panera but I am so scared of the noodles and chicken being in the soup and I am so so so so so scared. I HATE eating out but Panera soup is only 80 calories so it’s a little better but still I am anxious over the bad parts. My mom said she’d ask for it to be mostly broth (thankfully) so we will see. Plus it is REALLY REALLY BUSY. Lots of people and that makes everything worse but I’m glad we got a table near the back where there’s less people. 

I’m waiting at the table while my mom and sister order. I can do this. I think. Ugh the anxiety is NOT helping my nausea and everything smells delicious. I used to study here daily and now I am on the verge of panic attack. I can’t believe this. I can’t believe I am scared of frickin soup. 

Oh well, I am just going to make this as big of a #recoverywin as possible considering I wouldn’t have dared come unless my mom and sister convinced me and they only did that knowing about my ED so they were super supportive.

Post-meal update: I survived. I only drank the chicken broth but still I haven’t had anything other than my one safe food in months and I didn’t cry or freak out. Still, I wish I could enjoy the food and being at a restaurant. 

Why Do They HAVE to Trigger Me?!?!?!?!??

So I went home for the FIRST time since telling my doctor, who then told my mom. It’s taken me 2 days to work up this courage because my mom’s house is SO triggering ( I haven’t confessed that to them yet) because it always has food in it and someone is always eating. But I came home, spent the day with my mom and got a nice mani/ pedi-which was very needed after I picked all the gel polish off most of my hands leading up to and during my appt with the doctor Thursday. Then we came home and I went to my sister’s room to nap and then I woke up to my other sister making dinner. What is she making you might wonder… MY FAVORITE PRE-ED FOOD!! 😱😰😱😨😱😰

WTF?!?!?!?!?!??!?!!? 

I just honestly want to run out of here but I am frozen with fear. I don’t want to go near the food! Smelling it is soooo hard bc I just want some and ED is literally going berserk in my head screaming at me that they are trying to trick me, prove I don’t really have an ED, trying to make me fat, trying to throw it in my face that I can’t get myself to do this.

I just don’t understand why of all the meals on all the days they just HAD to have this one. It doesn’t seem coincidental, maybe I am really just over reading the situation but I just feel really offended and like all the support they showed earlier was just a lie and I honestly never want to come home again right now. I feel so alone. 

I bought extra food earlier when I had lunch so I could have my safe food for dinner (my mom even took me to two different stores bc neither sells both of the things I eat, and went the opposite direction) and now I don’t even want to eat. I hate this. I feel so made fun of and like they are being so inconsiderate. I just really don’t understand and my ED brain was loud all day bc I was hungry after my “run” (6 miles was all I managed) and even though I couldn’t bring myself to overcome it I was trying and now I feel like it is so much louder and evil and like I am trying all for nothing because then my sister turns around and does this.

I can reason that they might of thought it would let me feel easier to eat bc it is something I once liked but ITS ALL TOTALLY UNSAFE AND SO FAR FROM SAFE THAT I AM FAIRLY CERTAIN I MAY NEVER RECOVER ENOUGH TO EAT IT. That’s how bad it is. And to top it off it is something that once set off my stomach issues so it’s not only typical ED scary it’s also health issue scary to me. And I know part of me is just mad at myself bc I can’t overcome my ED to even have a spoonful of it but it just frustrates me THAT much more bc it is something I used to like.

I seriously just don’t understand. I am silently sobbing in my sisters room after telling them I was still sleepy but really I just have no clue what to do right now.

I wish I hadn’t told anyone. At least then I could’ve had a spoonful and then thrown it back up/spit it out but I know now they’d be watching and my ED would just have a fit so bad it may kill me. 

The Words I Can’t Say

Eating Disorder. I think I have an eating disorder. I’m scared I may have an eating disorder. Please God help I think I have an eating disorder. I can write eating disorder over and over again or say it in … Continue reading